Epilepsy
Why a book about epilepsy and seizures? The World Health Organization estimates that epilepsy affects more than 50 million people worldwide. 80% of people with epilepsy live in low- and middle-income countries where three-quarters of them do not receive proper treatment. People with epilepsy also face unacceptable levels of stigma and discrimination.
Hesperian’s book on epilepsy and seizures
How to help a person having a seizure from chapter 2 of Epilepsy and Seizures
What this book covers
Hesperian’s Epilepsy and Seizures provides information and strengthens networks to enable people with epilepsy and their families to live healthier, safer, and more fulfilling lives through improved seizure control, management of seizure triggers, and epilepsy education. This much-needed resource presents easy-to-understand and practical information about seizure types, seizure first aid, treatment options, and pregnancy and childbirth with epilepsy, and offers strategies to support the wellbeing of children and adults with epilepsy. The book’s emphasis on the social dimensions of epilepsy includes methodologies to understand and reduce stigma, promote inclusion, and prevent the physical and structural violence that can cause epilepsy and seizures. Designed for people with epilepsy as well as parents, advocates, health providers, teachers, and local leaders, this community-centered resource will be a lifesaver anywhere epilepsy care and information is limited—which is everywhere.
Our Community Review Process
The book development process for Epilepsy and Seizures has employed Hesperian’s proven participatory model, with draft chapters reviewed by more than 100 individuals and 40 organizations across 25 countries. Their input has informed the book’s focus and content, and their experiences are incorporated as stories, dialogue, and suggestions. Hesperian is working closely with the International Bureau for Epilepsy (IBE), the International League Against Epilepsy (ILAE), and country-specific partners to ensure the content is practical, culturally relevant, and accessible. This approach recognizes that people living with epilepsy, their families, caregivers, and health workers are well positioned to both inform and use the resulting book.
Sample Pages
Table of Contents: Epilepsy and Seizures
Ch. 1 – Epilepsy and seizures affect the brain
Ch 2 – How to help a person having seizures
Ch. 3 – Types of seizures and how to identify them
Ch. 4 – Medicines for epilepsy
Ch. 5 – Taking action against epilepsy stigma
Ch. 6 – Living well with epilepsy
Ch. 7 – Pregnancy and birth with epilepsy
Ch. 8 – Talking with children about epilepsy and seizures
Ch. 9 – Preventing violence can prevent epilepsy and seizures
We greatly appreciate your input on this and all Hesperian resources. For more information about this resource, or to share feedback, suggestions, or ideas, please email us at [email protected]
Hesperian staff writer, Aditi Malhotra (front), hosts a group review and feedback session in collaboration with Samman Association, one of our partners in Mumbai.
Health workers in Colombia participate in a group review session to gather feedback on Epilepsy and Seizures.
Explore these blog postings to learn about our community partners.
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